Osteogenesis Imperfecta (OI) also known as Brittle Bone Disease is a group of genetic disorders that mainly affects the bones. It results in bones that break easily. The severity may be mild to severe, this can be genetic (autosomal) or dominant.
We are creating a free Professional Network, developed to provide support and information for all working in the medical field of Osteogenesis Imperfecta and other rare bone diseases in Nigeria and around the world. Help us expand our network and support.
INTERESTED IN BECOMING A VOLUNTEER?
Volunteers are an important and valued part of the foundation. Together, staff and volunteers help to meet the needs of people with Osteogenesis Imperfecta and their families; locally and nationally across the country. This would not be possible without the contribution of our volunteers.
Interested? Contact us! We look forward to working with you!
He was born with 6 fractures and deformity on his legs. Currently in secondary school. Taking Pamidronate every 4 months. Had over 100 fractures.
On Pamidronate every 3 months. He has had lots of fractures due to OI Type 3.
Stephanie has had multiple fractures from infancy to adolescence but thank God for Zoledronic that has helped reduce fractures drastically.