Improving the quality of life for people diagnosed with OI

Raising OI Awareness in Nigeria & Africa 2021

Project Info

Project Description

Brittle Bone (OI) Awareness in Nigeria & Africa 2021

The event was held on the 8th of May 2021 was informative, educational, and very inspirational, the founder Mrs Tarela Aghanti also launched her book title “Unbreakable” Our journey with the brittle bone condition, she also shared her OI story, which is part of the contents of her book, we are very proud to say her book “Unbreakable” Our journey with brittle bone condition hit Amazon kindle unlimited best sellers on the day.

We would also like to say a huge thank you to all our amazing speakers.

  • Dr Adolfredo Santana
    • Spoke on “OI & Corrective Surgery”.
  • Prof. Oliver Selmer
    • Spoke on “The Importance of Vitamin D in OI children & adults”.
  • Prof Jean-Marc Retrouvey
    • Spoke on “Understanding Dentinogenesis Imperfecta”.
  • Dr Lida Zhytnik – who has OI herself
    • Spoke on “OI & Genetics”.
  • Prof Joy Onyesoh
    • Spoke on “Soaring with a child with OI in Africa”.
  • Julliet Makhapila – African Wonder Woman, founder of the UK Africa Diaspora Forum organisation, and the London Lead Regional Diversity Officer.
  • Kenyan high commissioner his excellency Manoah Esipisu.

Thank you to our Nigerian OI doctors

  • Dr Wole Dosunmu
  • Dr Friday Osawe
  • Dr Paul Metiah of St John’s hospital
  • Prof Maryann Ibekwe from Enugu
  • Prof Hafsatu Idris from Kaduna State

Together we are changing the natives of others in Nigeria and across Africa. There has been much positive feedback following the event, it was a great and safe space to learn more about this rare genetic condition. We have found more families living with this condition since the event, who we are now able to support. What an amazing and humbling opportunity to be able to give back to our Nigerian society and across Africa! We believe there is more to be done in terms of giving back and providing support, like medication (zoledronic Acid and corrective surgery).


Recordings from the event

OI & Genetics – Dr Lida Zhytnik

OI from the Nigerian perspective – Dr Wole Dosunmu of St Charles Hospital, Surulere, Lagos, Nigeria

Soaring with a child with OI in Africa – Prof Joy Onyesoh

OI & Corrective Surgery – Dr Adolfredo Santana

The Importance of Vitamin D in OI Children & Adults – Prof. Oliver Selmer